Development of Mentor Houses and mentoring network for premature babies and their families in the Southern Great Plain Region (Q3883434): Difference between revisions
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According to the WHO definition of premature birth, babies born before or below 2 500 g are considered to be premature babies, including those below 2 500 g as lightweight, those below 1 500 g very light weight, and those less than 1000 grams as extreme lightweights. Premature babies are not only smaller in length and weight, but because of their premature birth, they are unable to live without vital support due to the shorter time spent in the womb. As a result, their life expectancy can only be envisaged in the framework of a newborn intensive care (PIC=Perinatal Intensive Centre) providing special support. It is difficult for premature babies and their parents to cope with it with a series of loss experiences. This is a serious mental burden for parents, mothers struggle with self-incrimination, mourning, shame, and the feeling of inertia in fathers causes a tense state. Premature birth often makes the most stable parental relationships fragile and puts it under severe testing. Taking into account international and home trends, with the development of modern medicine, infant mortality has steadily decreased, but this trend is not typical of premature birth. According to data referring to the WHO, the global share of premature births is 11.5 %, representing 15 million premature births per year. This share is lower in Hungary, at 8-8.5 %, but still 1 % worse than the EU average. The management of this in the health budget amounts to HUF 9-10 billion per year. Looking at trends, it can be said that premature birth in Hungary is a problem that affects every 10th parent(pair) on average, and this trend can be seen as constant. The medical and infrastructural treatment of premature birth also results from the EUR 9-10 billion highlighted above. However, there is not enough established institutional and other practices to address other aspects of premature birth and to meet the social needs of them, although it is in great need. This can be a niche for various NGOs and foundations. In the Southern Great Plain Region, the Foundation for the Early Early Intensive Class of Southern Great Plain, which has been operating since 2012, is trying to fulfil this role. The main objective of the Foundation is to support the situation of those affected by premature birth, primarily through the facilitation of the ultra-early development period, which determines the very first stage of the life of premature babies. Premature birth is an unplanned, physically, financially and psychologically burdensome event that, even if the baby is healthy and well-developed, has an impact on the fate of the child and his or her parents and siblings. Thus, while all the professions involved (doctors, nurses, nurses, physiotherapists, physiotherapists, developing teachers, psychologists, etc.) should have an important objective of prevention, prevention of premature births, and there will be activities to this end in the present project, a strong emphasis should be placed on helping the families of pre-born children and dealing more effectively with the consequences of premature births that occur despite any desirable decrease in the premature birth rate. The objective of this project is a variety of activities; providing assistance to parents who have a premature birth child through the development of a mentor program and three mentor houses (Szeged, Kecskemét, Gyula), preventive development of premature children under the age of 6 to assist their integration in public education, as well as the organisation of conferences and workshops, and the creation of various professional materials. The project could therefore provide services to the affected families of the Southern Great Plain Region, which are of a nature that fills the gap in terms of peer-to-peer assistance and assistance for the entire family of premature infants. The goals to be achieved in the region would be good practice at national level, which could be transposed into the practice of other regions. A key element of the project’s mission is the work of mentors trained from peer-to-peer parents, as well as support and informative activities in the Foundation’s mission. The idea of the mentoring programme and mentoring training planned in this project has already been successfully implemented in several similar and in some cases related areas (e.g. blindness, poor vision may be a consequence of premature birth). The method of co-responsibility can be identified as contributing to all three objectives of the project. It directly supports the objective of providing adequate mentoring support to all those concerned — in this case the parents concerned — and indirectly, thanks to the information and experience shared by the peers, it also supports the integration and psychosocial development of preterm infants. (English) | |||||||||||||||
| Property / summary: According to the WHO definition of premature birth, babies born before or below 2 500 g are considered to be premature babies, including those below 2 500 g as lightweight, those below 1 500 g very light weight, and those less than 1000 grams as extreme lightweights. Premature babies are not only smaller in length and weight, but because of their premature birth, they are unable to live without vital support due to the shorter time spent in the womb. As a result, their life expectancy can only be envisaged in the framework of a newborn intensive care (PIC=Perinatal Intensive Centre) providing special support. It is difficult for premature babies and their parents to cope with it with a series of loss experiences. This is a serious mental burden for parents, mothers struggle with self-incrimination, mourning, shame, and the feeling of inertia in fathers causes a tense state. Premature birth often makes the most stable parental relationships fragile and puts it under severe testing. Taking into account international and home trends, with the development of modern medicine, infant mortality has steadily decreased, but this trend is not typical of premature birth. According to data referring to the WHO, the global share of premature births is 11.5 %, representing 15 million premature births per year. This share is lower in Hungary, at 8-8.5 %, but still 1 % worse than the EU average. The management of this in the health budget amounts to HUF 9-10 billion per year. Looking at trends, it can be said that premature birth in Hungary is a problem that affects every 10th parent(pair) on average, and this trend can be seen as constant. The medical and infrastructural treatment of premature birth also results from the EUR 9-10 billion highlighted above. However, there is not enough established institutional and other practices to address other aspects of premature birth and to meet the social needs of them, although it is in great need. This can be a niche for various NGOs and foundations. In the Southern Great Plain Region, the Foundation for the Early Early Intensive Class of Southern Great Plain, which has been operating since 2012, is trying to fulfil this role. The main objective of the Foundation is to support the situation of those affected by premature birth, primarily through the facilitation of the ultra-early development period, which determines the very first stage of the life of premature babies. Premature birth is an unplanned, physically, financially and psychologically burdensome event that, even if the baby is healthy and well-developed, has an impact on the fate of the child and his or her parents and siblings. Thus, while all the professions involved (doctors, nurses, nurses, physiotherapists, physiotherapists, developing teachers, psychologists, etc.) should have an important objective of prevention, prevention of premature births, and there will be activities to this end in the present project, a strong emphasis should be placed on helping the families of pre-born children and dealing more effectively with the consequences of premature births that occur despite any desirable decrease in the premature birth rate. The objective of this project is a variety of activities; providing assistance to parents who have a premature birth child through the development of a mentor program and three mentor houses (Szeged, Kecskemét, Gyula), preventive development of premature children under the age of 6 to assist their integration in public education, as well as the organisation of conferences and workshops, and the creation of various professional materials. The project could therefore provide services to the affected families of the Southern Great Plain Region, which are of a nature that fills the gap in terms of peer-to-peer assistance and assistance for the entire family of premature infants. The goals to be achieved in the region would be good practice at national level, which could be transposed into the practice of other regions. A key element of the project’s mission is the work of mentors trained from peer-to-peer parents, as well as support and informative activities in the Foundation’s mission. The idea of the mentoring programme and mentoring training planned in this project has already been successfully implemented in several similar and in some cases related areas (e.g. blindness, poor vision may be a consequence of premature birth). The method of co-responsibility can be identified as contributing to all three objectives of the project. It directly supports the objective of providing adequate mentoring support to all those concerned — in this case the parents concerned — and indirectly, thanks to the information and experience shared by the peers, it also supports the integration and psychosocial development of preterm infants. (English) / rank | |||||||||||||||
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| Property / summary: According to the WHO definition of premature birth, babies born before or below 2 500 g are considered to be premature babies, including those below 2 500 g as lightweight, those below 1 500 g very light weight, and those less than 1000 grams as extreme lightweights. Premature babies are not only smaller in length and weight, but because of their premature birth, they are unable to live without vital support due to the shorter time spent in the womb. As a result, their life expectancy can only be envisaged in the framework of a newborn intensive care (PIC=Perinatal Intensive Centre) providing special support. It is difficult for premature babies and their parents to cope with it with a series of loss experiences. This is a serious mental burden for parents, mothers struggle with self-incrimination, mourning, shame, and the feeling of inertia in fathers causes a tense state. Premature birth often makes the most stable parental relationships fragile and puts it under severe testing. Taking into account international and home trends, with the development of modern medicine, infant mortality has steadily decreased, but this trend is not typical of premature birth. According to data referring to the WHO, the global share of premature births is 11.5 %, representing 15 million premature births per year. This share is lower in Hungary, at 8-8.5 %, but still 1 % worse than the EU average. The management of this in the health budget amounts to HUF 9-10 billion per year. Looking at trends, it can be said that premature birth in Hungary is a problem that affects every 10th parent(pair) on average, and this trend can be seen as constant. The medical and infrastructural treatment of premature birth also results from the EUR 9-10 billion highlighted above. However, there is not enough established institutional and other practices to address other aspects of premature birth and to meet the social needs of them, although it is in great need. This can be a niche for various NGOs and foundations. In the Southern Great Plain Region, the Foundation for the Early Early Intensive Class of Southern Great Plain, which has been operating since 2012, is trying to fulfil this role. The main objective of the Foundation is to support the situation of those affected by premature birth, primarily through the facilitation of the ultra-early development period, which determines the very first stage of the life of premature babies. Premature birth is an unplanned, physically, financially and psychologically burdensome event that, even if the baby is healthy and well-developed, has an impact on the fate of the child and his or her parents and siblings. Thus, while all the professions involved (doctors, nurses, nurses, physiotherapists, physiotherapists, developing teachers, psychologists, etc.) should have an important objective of prevention, prevention of premature births, and there will be activities to this end in the present project, a strong emphasis should be placed on helping the families of pre-born children and dealing more effectively with the consequences of premature births that occur despite any desirable decrease in the premature birth rate. The objective of this project is a variety of activities; providing assistance to parents who have a premature birth child through the development of a mentor program and three mentor houses (Szeged, Kecskemét, Gyula), preventive development of premature children under the age of 6 to assist their integration in public education, as well as the organisation of conferences and workshops, and the creation of various professional materials. The project could therefore provide services to the affected families of the Southern Great Plain Region, which are of a nature that fills the gap in terms of peer-to-peer assistance and assistance for the entire family of premature infants. The goals to be achieved in the region would be good practice at national level, which could be transposed into the practice of other regions. A key element of the project’s mission is the work of mentors trained from peer-to-peer parents, as well as support and informative activities in the Foundation’s mission. The idea of the mentoring programme and mentoring training planned in this project has already been successfully implemented in several similar and in some cases related areas (e.g. blindness, poor vision may be a consequence of premature birth). The method of co-responsibility can be identified as contributing to all three objectives of the project. It directly supports the objective of providing adequate mentoring support to all those concerned — in this case the parents concerned — and indirectly, thanks to the information and experience shared by the peers, it also supports the integration and psychosocial development of preterm infants. (English) / qualifier | |||||||||||||||
point in time: 8 February 2022
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Revision as of 10:45, 8 February 2022
Project Q3883434 in Hungary
| Language | Label | Description | Also known as |
|---|---|---|---|
| English | Development of Mentor Houses and mentoring network for premature babies and their families in the Southern Great Plain Region |
Project Q3883434 in Hungary |
Statements
1,200,089,709 forint
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3,280,595.95 Euro
0.0027336256 Euro
10 December 2021
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3,859,524.648 Euro
0.0027336256 Euro
10 December 2021
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1,411,870,245.882 forint
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85.0 percent
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1 July 2017
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31 March 2022
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Korábban érkeztem Dél-alföldi Regionális Koraszülött Intenzív Osztályért Alapítvány
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A koraszülés WHO szerinti meghatározása alapján a 37. hét előtt vagy 2500 g alatt születő babákat tekinthetők koraszülöttnek, ezen belül a 2500g alattiak kissúlyúaknak, az 1500g alattiak igen kissúlyúaknak, az 1000 grammnál kisebbeket pedig extrém kissúlyúaknak nevezzük. A koraszülöttek nem egyszerűen csak hosszúságukban, súlyukban kisebbek, hanem koraszülöttségükből fakadóan, az anyaméhben eltöltött rövidebb idő következtében a vitális támogatás nélkül életre képtelenek. Ennek következtében életkilátásaik csak speciális támogatást nyújtó újszülött intenzív ellátás (PIC=Perinatális Intenzív Centrum) keretében képzelhető el. A koraszülött csecsemők és szüleik számára egyaránt nehéz ez az időszak, az ezzel történő megküzdést veszteségélmények sorozata kíséri. Ez a komoly mentális terhet jelent a szülők számára, az anyák önváddal, gyásszal, szégyenérzettel küzdenek, az apákban pedig a tehetetlenség érzete idézi elő a feszült állapotot. A koraszülés gyakran a legstabilabb szülői kapcsolatokat is törékennyé teszi, súlyos próbatétel elé állítja. A nemzetközi és a haza tendenciákat figyelembe véve a modern orvostudomány fejlődésével folyamatosan csökkent a csecsemőhalandóság, ám a koraszületésre ez a tendencia nem jellemző. A WHO-ra hivatkozó adatok szerint világszinten 11,5%-os a koraszülések aránya az összes szülésen belül, ami évente 15 millió koraszülöttet jelent. Ez az arány Magyarországon alacsonyabb, 8-8,5%-os, de így is 1%-kal rosszabb, mint az EU-s átlag. Az egészségügyi költségvetésben ennek kezelése 9-10 milliárd Ft/év kiadást jelent. A tendenciákat vizsgálva elmondható, hogy a koraszülés Magyarországon egy olyan probléma, mely átlagosan minden 10. szülő(pár)t érinti és ez a tendencia állandónak mondható. A koraszülés orvosi, infrastrukturális szempontból való kezelése a fent kiemelt 9-10 milliárdos összegből fakadóan is hangsúlyos. A koraszülés egyéb aspektusainak kezelésére, az ezekre mutatkozó társadalmi igények kielégítésére viszont még nincs elég kialakult intézményi és egyéb gyakorlat, pedig nagy szüksége lenne rá. Ebben lehet hiánypótló szerepe a különböző civil szerveződéseknek, alapítványoknak. A Dél-Alföld Régióban ezt a szerepet a 2012 óta működő Korábban Érkeztem Dél-Alföldi Regionális Koraszülött Intenzív Osztályért Alapítvány igyekszik betölteni. Az Alapítvány fő célkitűzése, hogy a koraszülöttségben érintettek helyzetét segítse, elsősorban a koraszülöttek életének legelső életszakaszában meghatározó, intenzív osztályon töltött, ultrakorai fejlesztési időszak megkönnyítésén keresztül. A koraszülés egy olyan nem tervezett, fizikailag, anyagilag és lelkileg megterhelő esemény, mely szerencsés esetben is – ha a baba egészséges, megfelelően fejlődő lesz – kihatással van a gyermek és szülei, testvérei sorsára. Így aztán mindamellett, hogy minden érintett szakmának (orvos, ápoló, védőnő, gyógytornász, fejlesztő pedagógus, pszichológus, stb.) fontos célja kell legyen a prevenció, a koraszülés megelőzése, – és a jelen projektben is lesznek erre irányuló tevékenységek - nagy hangsúlyt kell fektetni a már megszületett koraszülött gyermekek családjainak segítésére, illetve a koraszülési arány esetleges kívánatos csökkenése ellenére is megtörténő koraszülések következményeinek minél eredményesebb kezelésére. Jelen projekt célja többféle tevékenységgel; egy mentorprogram és három mentorház (Szeged, Kecskemét, Gyula) kialakításával, a 6 éven aluli koraszülött gyermekek preventív, a köznevelési integrációjukat segítő fejlesztésével, valamint konferenciák és workshopok szervezésével, különböző szakmai anyagok megalkotásával történő segítségnyújtás azoknak a szülőknek, akiknek koraszülött gyermekük született. A projekt keretében tehát olyan szolgáltatások válhatnának elérhetővé a Dél-Alföld Régió érintett családjai számára, melyek a sorstársi segítés, a koraszülöttek családjának egészét célzó segítés tekintetében hiánypótló jellegűek. A régióban megvalósítandó célok pedig országos szintű jó gyakorlatot jelentenének, mely más régiók gyakorlatába is átültethető lehetne. A projekt küldetésének hangsúlyos eleme a sorstárs szülőkből képzett mentorok munkája, mint az alapítvány küldetésében is hangsúlyos támaszadás és informálás célokat segítő tevékenység. A jelen projektben tervezett mentorprogram kialakítás, valamint mentorképzés ötlete már több, hasonló és némely esetben kapcsolódó (például a vakság, gyengén látás lehet a koraszülöttség egyik következménye) területen sikeresen működő gyakorlat. A sorstárs segítés módszeréről megállapítható, hogy az a projekt mindhárom célkitűzéséhez hozzájárul. Közvetlen módon támogatja azt a célt, hogy minden érintett – jelen esetben az érintett szülők - kapjon megfelelő mentori támogatást, közvetve pedig - a sorstársak által megosztott információknak, tapasztalatoknak köszönhetően – a koraszülöttek köznevelési integrációját és pszichoszociális fejlesztését is segíti. (Hungarian)
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According to the WHO definition of premature birth, babies born before or below 2 500 g are considered to be premature babies, including those below 2 500 g as lightweight, those below 1 500 g very light weight, and those less than 1000 grams as extreme lightweights. Premature babies are not only smaller in length and weight, but because of their premature birth, they are unable to live without vital support due to the shorter time spent in the womb. As a result, their life expectancy can only be envisaged in the framework of a newborn intensive care (PIC=Perinatal Intensive Centre) providing special support. It is difficult for premature babies and their parents to cope with it with a series of loss experiences. This is a serious mental burden for parents, mothers struggle with self-incrimination, mourning, shame, and the feeling of inertia in fathers causes a tense state. Premature birth often makes the most stable parental relationships fragile and puts it under severe testing. Taking into account international and home trends, with the development of modern medicine, infant mortality has steadily decreased, but this trend is not typical of premature birth. According to data referring to the WHO, the global share of premature births is 11.5 %, representing 15 million premature births per year. This share is lower in Hungary, at 8-8.5 %, but still 1 % worse than the EU average. The management of this in the health budget amounts to HUF 9-10 billion per year. Looking at trends, it can be said that premature birth in Hungary is a problem that affects every 10th parent(pair) on average, and this trend can be seen as constant. The medical and infrastructural treatment of premature birth also results from the EUR 9-10 billion highlighted above. However, there is not enough established institutional and other practices to address other aspects of premature birth and to meet the social needs of them, although it is in great need. This can be a niche for various NGOs and foundations. In the Southern Great Plain Region, the Foundation for the Early Early Intensive Class of Southern Great Plain, which has been operating since 2012, is trying to fulfil this role. The main objective of the Foundation is to support the situation of those affected by premature birth, primarily through the facilitation of the ultra-early development period, which determines the very first stage of the life of premature babies. Premature birth is an unplanned, physically, financially and psychologically burdensome event that, even if the baby is healthy and well-developed, has an impact on the fate of the child and his or her parents and siblings. Thus, while all the professions involved (doctors, nurses, nurses, physiotherapists, physiotherapists, developing teachers, psychologists, etc.) should have an important objective of prevention, prevention of premature births, and there will be activities to this end in the present project, a strong emphasis should be placed on helping the families of pre-born children and dealing more effectively with the consequences of premature births that occur despite any desirable decrease in the premature birth rate. The objective of this project is a variety of activities; providing assistance to parents who have a premature birth child through the development of a mentor program and three mentor houses (Szeged, Kecskemét, Gyula), preventive development of premature children under the age of 6 to assist their integration in public education, as well as the organisation of conferences and workshops, and the creation of various professional materials. The project could therefore provide services to the affected families of the Southern Great Plain Region, which are of a nature that fills the gap in terms of peer-to-peer assistance and assistance for the entire family of premature infants. The goals to be achieved in the region would be good practice at national level, which could be transposed into the practice of other regions. A key element of the project’s mission is the work of mentors trained from peer-to-peer parents, as well as support and informative activities in the Foundation’s mission. The idea of the mentoring programme and mentoring training planned in this project has already been successfully implemented in several similar and in some cases related areas (e.g. blindness, poor vision may be a consequence of premature birth). The method of co-responsibility can be identified as contributing to all three objectives of the project. It directly supports the objective of providing adequate mentoring support to all those concerned — in this case the parents concerned — and indirectly, thanks to the information and experience shared by the peers, it also supports the integration and psychosocial development of preterm infants. (English)
8 February 2022
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Szeged, Csongrád-Csanád
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Identifiers
EFOP-1.2.10-16-2016-00002
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