DIGNITY AND DESIRE TO DIE IN PATIENTS WITH ADVANCED DISEASE: STUDY OF ASSOCIATED FACTORS AND EXPERIENCES OF PATIENTS AND PROFESSIONALS (Q3149501): Difference between revisions
Jump to navigation
Jump to search
(Removed claim: summary (P836): Changes in value systems, increased life expectancy and the transformation of the way of understanding the disease lead to a greater presence in patients of desire to die (Ddm). The perception of deterioration of one’s dignity is supposed to be a determinant of Ddm, but it is worth studying the association and deepening the phenomenon. OBJECTIVES: a) identify contributing factors of Ddm (including perception of dignity) in our environment and...) |
(Created claim: summary (P836): Changes in value systems, increased life expectancy and the transformation of the way of understanding the disease lead to a greater presence in patients of desire to die (Ddm). The perception of deterioration of one’s dignity is supposed to be a determinant of Ddm, but it is worth studying the association and deepening the phenomenon. OBJECTIVES: a) identify contributing factors of Ddm (including perception of dignity) in our environment and b)...) |
||||||||||||||
| Property / summary | |||||||||||||||
Changes in value systems, increased life expectancy and the transformation of the way of understanding the disease lead to a greater presence in patients of desire to die (Ddm). The perception of deterioration of one’s dignity is supposed to be a determinant of Ddm, but it is worth studying the association and deepening the phenomenon. OBJECTIVES: a) identify contributing factors of Ddm (including perception of dignity) in our environment and b) know the experiences of patients with advanced disease and Ddm. Secondary objectives: I) assess feasibility of systematically maintaining an interview on Ddm, ii) study whether exploring produces immediate changes in Ddm intensity, iii) compare in populations different Ddm factors and iv) know the experience of the professionals exploring it. METHOD: Multicenter study of mixed methodology (combination of quantitative and qualitative methodology). Socio-demographic and clinical data shall be recorded. Will be evaluated (in 2 successive days) desire to die (AFIDD), intensity of symptoms (ESAS-r), perception of dignity (PDI), anxiety and depression (HADS), and demoralisation (DS-II). Patient experience will be explored through conversational interviews. Focus groups will be held with professionals. The quantitative data will be analysed with logistic regression. Qualitative information will be analysed using a hermeneutic phenomenological approach. This innovative study will allow you to understand different Ddm typologies, facilitating personalised interventions to improve quality of life. (English) | |||||||||||||||
| Property / summary: Changes in value systems, increased life expectancy and the transformation of the way of understanding the disease lead to a greater presence in patients of desire to die (Ddm). The perception of deterioration of one’s dignity is supposed to be a determinant of Ddm, but it is worth studying the association and deepening the phenomenon. OBJECTIVES: a) identify contributing factors of Ddm (including perception of dignity) in our environment and b) know the experiences of patients with advanced disease and Ddm. Secondary objectives: I) assess feasibility of systematically maintaining an interview on Ddm, ii) study whether exploring produces immediate changes in Ddm intensity, iii) compare in populations different Ddm factors and iv) know the experience of the professionals exploring it. METHOD: Multicenter study of mixed methodology (combination of quantitative and qualitative methodology). Socio-demographic and clinical data shall be recorded. Will be evaluated (in 2 successive days) desire to die (AFIDD), intensity of symptoms (ESAS-r), perception of dignity (PDI), anxiety and depression (HADS), and demoralisation (DS-II). Patient experience will be explored through conversational interviews. Focus groups will be held with professionals. The quantitative data will be analysed with logistic regression. Qualitative information will be analysed using a hermeneutic phenomenological approach. This innovative study will allow you to understand different Ddm typologies, facilitating personalised interventions to improve quality of life. (English) / rank | |||||||||||||||
Normal rank | |||||||||||||||
| Property / summary: Changes in value systems, increased life expectancy and the transformation of the way of understanding the disease lead to a greater presence in patients of desire to die (Ddm). The perception of deterioration of one’s dignity is supposed to be a determinant of Ddm, but it is worth studying the association and deepening the phenomenon. OBJECTIVES: a) identify contributing factors of Ddm (including perception of dignity) in our environment and b) know the experiences of patients with advanced disease and Ddm. Secondary objectives: I) assess feasibility of systematically maintaining an interview on Ddm, ii) study whether exploring produces immediate changes in Ddm intensity, iii) compare in populations different Ddm factors and iv) know the experience of the professionals exploring it. METHOD: Multicenter study of mixed methodology (combination of quantitative and qualitative methodology). Socio-demographic and clinical data shall be recorded. Will be evaluated (in 2 successive days) desire to die (AFIDD), intensity of symptoms (ESAS-r), perception of dignity (PDI), anxiety and depression (HADS), and demoralisation (DS-II). Patient experience will be explored through conversational interviews. Focus groups will be held with professionals. The quantitative data will be analysed with logistic regression. Qualitative information will be analysed using a hermeneutic phenomenological approach. This innovative study will allow you to understand different Ddm typologies, facilitating personalised interventions to improve quality of life. (English) / qualifier | |||||||||||||||
point in time: 12 October 2021
| |||||||||||||||
Revision as of 15:11, 12 October 2021
Project Q3149501 in Spain
| Language | Label | Description | Also known as |
|---|---|---|---|
| English | DIGNITY AND DESIRE TO DIE IN PATIENTS WITH ADVANCED DISEASE: STUDY OF ASSOCIATED FACTORS AND EXPERIENCES OF PATIENTS AND PROFESSIONALS |
Project Q3149501 in Spain |
Statements
8,500.0 Euro
0 references
17,000.0 Euro
0 references
50.0 percent
0 references
1 January 2019
0 references
31 March 2022
0 references
FUNDACION INSTITUTO DE INVESTIGACION SANITARIA DE NAVARRA
0 references
42°49'6.42"N, 1°38'39.34"W
0 references
31201
0 references
Los cambios en los sistemas de valores, el incremento de la esperanza de vida y la transformación del modo de entender la enfermedad conducen a una mayor presencia en los pacientes de deseos de morir (Ddm). La percepción de deterioro de la propia dignidad se supone un determinante de Ddm pero cabe estudiar la asociación y profundizar en el fenómeno. OBJETIVOS: a) identificar factores contribuyentes de Ddm (incluida la percepción de dignidad) en nuestro medio y b) conocer las vivencias de pacientes con enfermedad avanzada y Ddm. Objetivos secundarios: i) valorar factibilidad de mantener sistemáticamente una entrevista sobre Ddm, ii) estudiar si explorar produce cambios inmediatos en la intensidad de Ddm, iii) comparar en poblaciones diferentes factores de Ddm y iv) conocer la experiencia de los profesionales que lo exploran. MÉTODO: Estudio multicéntrico de metodología mixta (combinación de metodología cuantitativa y cualitativa). Se registrarán datos socio-demográficos y clínicos. Se evalúarán (en 2 días sucesivos) deseos de morir (AFIDD), intensidad de síntomas (ESAS-r), percepción de dignidad (PDI), ansiedad y depresión (HADS), y desmoralización (DS-II). La experiencia de los pacientes se explorará con entrevistas conversacionales. Se realizarán grupos focales con profesionales. Los datos cuantitativos se analizarán con regresión logística. El análisis de la información cualitativa se hará con enfoque fenomenológico hermenéutico. Este estudio innovador permitirá comprender diferentes tipologías de Ddm, facilitando intervenciones personalizadas de mejora de calidad de vida. (Spanish)
0 references
Changes in value systems, increased life expectancy and the transformation of the way of understanding the disease lead to a greater presence in patients of desire to die (Ddm). The perception of deterioration of one’s dignity is supposed to be a determinant of Ddm, but it is worth studying the association and deepening the phenomenon. OBJECTIVES: a) identify contributing factors of Ddm (including perception of dignity) in our environment and b) know the experiences of patients with advanced disease and Ddm. Secondary objectives: I) assess feasibility of systematically maintaining an interview on Ddm, ii) study whether exploring produces immediate changes in Ddm intensity, iii) compare in populations different Ddm factors and iv) know the experience of the professionals exploring it. METHOD: Multicenter study of mixed methodology (combination of quantitative and qualitative methodology). Socio-demographic and clinical data shall be recorded. Will be evaluated (in 2 successive days) desire to die (AFIDD), intensity of symptoms (ESAS-r), perception of dignity (PDI), anxiety and depression (HADS), and demoralisation (DS-II). Patient experience will be explored through conversational interviews. Focus groups will be held with professionals. The quantitative data will be analysed with logistic regression. Qualitative information will be analysed using a hermeneutic phenomenological approach. This innovative study will allow you to understand different Ddm typologies, facilitating personalised interventions to improve quality of life. (English)
12 October 2021
0 references
Pamplona/Iruña
0 references
Identifiers
PI18_01703
0 references