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(Created claim: summary (P836): The MINORITARY DISEASES (MS) PRODUCT MULTIPLE IMPACTS IN FAMILY, socio-educational and health ambITIES, so minimising them is a challenge that requires a CONTEXTUALised search._x000D_ The LITERATURE INDICATE THE DOUBLE EFFECTIVE THAT IS THE PRIVATION OF A EDUCATIVE AND SOCIAL TAN RELEVANT AS THE SCHOOL. THEY DIRECTLY AFFECT THE WELL-BEING OF CHILDREN AND ADOLESCENTS, WHICH IS ALSO DIMINISHED BY THE DIFFICULTIES CAUSED IN THEIR SCHOOLING BY ABSEN...) |
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The MINORITARY DISEASES (MS) PRODUCT MULTIPLE IMPACTS IN FAMILY, socio-educational and health ambITIES, so minimising them is a challenge that requires a CONTEXTUALised search._x000D_ The LITERATURE INDICATE THE DOUBLE EFFECTIVE THAT IS THE PRIVATION OF A EDUCATIVE AND SOCIAL TAN RELEVANT AS THE SCHOOL. THEY DIRECTLY AFFECT THE WELL-BEING OF CHILDREN AND ADOLESCENTS, WHICH IS ALSO DIMINISHED BY THE DIFFICULTIES CAUSED IN THEIR SCHOOLING BY ABSENTEEISM, IGNORANCE OF EM, OR LACK OF ADEQUATE SUPPORT. TO THIS IS ADDED THE CHILD’S OWN EXPERIENCE WITH THE DISEASE, WHICH FORCES HIM TO RELATE IN A NEW ENVIRONMENT OFTEN INTIMIDATING SUCH AS THE HEALTH CARE. The IMPACT of the MS is also known in the FAMILY SYSTEM, describing different critic phases as the expectation or absence of a clear diagnostic, the SPECIFIC MEDICATION FALTA, DIFICULTS IN TREATMENT OR SOCIAL INCOMPRENSION._x000D_ ONE OF THE MORE ANTECENTS determinants of this state in the ConText BALEAR is the INEDITHOS PROJECT, SURGITED OF THE INTENCTION OF IMPROVING THE QUALITY OF LIFE OF PATIENTS WHICH THE PERMANENT FORMATION IN THE SEMICRITIC UNIT OF THE PEDIATRIA SERVICE OF THE HOSPITAL ARE ESPASES, providing Attention and RESOURCES IN THE EDUCATIVE AND SOCIAL ENVIRONMENT OF THE COLABORATION WITH THE UNIVERSITY OF THE UNIVERSITY OF LES ILLES BALEARS (UIB)._x000D_ RESULTS DERIVED OF A R & D R & D POINT OF MANIFIESTIVE THAT THE PEDIATRIC ATENTION REQUIRED ADAPTED COMMUNICATION the NIVEL OF COMPRENSION AND EMOTIONAL STATES OF THE MENORES AND YOUR FAMILYS, BUT A COORDINATION WITH THE EDUCATIVE SYSTEM TO MINIMICE REPERCUSIONS, SINGLE FOR THE MENOR AS FOR YOUR DOCENTS AND COMPANIES OF CLASS._x000D_ HIPOTESIS: The QUALITY OF LIFE OF CHILDREN AND ADOLESCENTS WITH MS can improve if EDUCATIVE SOLUTIONS DIRIGTED TO INCREMENT COORDINACATION AND COMMUNICATION OF IMPLICED AGENTS MEDITED STRATEGIES AND INFORMATIVES AND TECHNOLOGICAL SUPPORT._x000D_ THE PROJECT the complexity of the attention to persons with MS and the needs that the different AGENTS may be able to play (PERSONAL SANITARY, PERSONAL EDUCATIVO, CHILDREN/young with MS and their families), with the task of improving the communication and coordination between educational and health systems, and to offer feedback to the Professor to sensitise and facilitate the inclusion of the best with the support of UNIVERSITY SERVICE-SERVICE STRATEGIES. In addition, it adapts to the NATIONAL RESEARCH STRATEGIES AND HORIZONTE 2020._x000D_ A MIXTA METODOLOGY, USING QUESTIONS AND DISCUTION GROUPS IN DISTINT FASES. The INVESTIGATION is based on the design process following the “SAM” model that permits, at its time, to be complemented by other qualitative and quantitative methods._x000D_ Experiencing IMPACTS INCLUDING INCLUDING INCLUDING IN THE WELCOME OF THE BEST FRUT OF THE SENSIBILISATION, FORMATION, COMMUNICATION AND COORDINATION BETWEEN IMPLICED AGENTS. THE RESULTS WILL BE REALISED IN THE CREATION OF GUIDELINES, PROGRAMS AND PROJECTS OF LEARNING-SERVICE BETWEEN THE UNIVERSITY AND THE SCHOOL/HEALTH INSTITUTIONS, THE DESIGN OF TEACHING METHODS AND TECHNOLOGICAL RESOURCES ADAPTED, AND A SCIENTIFIC PRODUCTION TRANSFERABLE TO OTHER CONTEXTS. (English) | |||||||||||||||
| Property / summary: The MINORITARY DISEASES (MS) PRODUCT MULTIPLE IMPACTS IN FAMILY, socio-educational and health ambITIES, so minimising them is a challenge that requires a CONTEXTUALised search._x000D_ The LITERATURE INDICATE THE DOUBLE EFFECTIVE THAT IS THE PRIVATION OF A EDUCATIVE AND SOCIAL TAN RELEVANT AS THE SCHOOL. THEY DIRECTLY AFFECT THE WELL-BEING OF CHILDREN AND ADOLESCENTS, WHICH IS ALSO DIMINISHED BY THE DIFFICULTIES CAUSED IN THEIR SCHOOLING BY ABSENTEEISM, IGNORANCE OF EM, OR LACK OF ADEQUATE SUPPORT. TO THIS IS ADDED THE CHILD’S OWN EXPERIENCE WITH THE DISEASE, WHICH FORCES HIM TO RELATE IN A NEW ENVIRONMENT OFTEN INTIMIDATING SUCH AS THE HEALTH CARE. The IMPACT of the MS is also known in the FAMILY SYSTEM, describing different critic phases as the expectation or absence of a clear diagnostic, the SPECIFIC MEDICATION FALTA, DIFICULTS IN TREATMENT OR SOCIAL INCOMPRENSION._x000D_ ONE OF THE MORE ANTECENTS determinants of this state in the ConText BALEAR is the INEDITHOS PROJECT, SURGITED OF THE INTENCTION OF IMPROVING THE QUALITY OF LIFE OF PATIENTS WHICH THE PERMANENT FORMATION IN THE SEMICRITIC UNIT OF THE PEDIATRIA SERVICE OF THE HOSPITAL ARE ESPASES, providing Attention and RESOURCES IN THE EDUCATIVE AND SOCIAL ENVIRONMENT OF THE COLABORATION WITH THE UNIVERSITY OF THE UNIVERSITY OF LES ILLES BALEARS (UIB)._x000D_ RESULTS DERIVED OF A R & D R & D POINT OF MANIFIESTIVE THAT THE PEDIATRIC ATENTION REQUIRED ADAPTED COMMUNICATION the NIVEL OF COMPRENSION AND EMOTIONAL STATES OF THE MENORES AND YOUR FAMILYS, BUT A COORDINATION WITH THE EDUCATIVE SYSTEM TO MINIMICE REPERCUSIONS, SINGLE FOR THE MENOR AS FOR YOUR DOCENTS AND COMPANIES OF CLASS._x000D_ HIPOTESIS: The QUALITY OF LIFE OF CHILDREN AND ADOLESCENTS WITH MS can improve if EDUCATIVE SOLUTIONS DIRIGTED TO INCREMENT COORDINACATION AND COMMUNICATION OF IMPLICED AGENTS MEDITED STRATEGIES AND INFORMATIVES AND TECHNOLOGICAL SUPPORT._x000D_ THE PROJECT the complexity of the attention to persons with MS and the needs that the different AGENTS may be able to play (PERSONAL SANITARY, PERSONAL EDUCATIVO, CHILDREN/young with MS and their families), with the task of improving the communication and coordination between educational and health systems, and to offer feedback to the Professor to sensitise and facilitate the inclusion of the best with the support of UNIVERSITY SERVICE-SERVICE STRATEGIES. In addition, it adapts to the NATIONAL RESEARCH STRATEGIES AND HORIZONTE 2020._x000D_ A MIXTA METODOLOGY, USING QUESTIONS AND DISCUTION GROUPS IN DISTINT FASES. The INVESTIGATION is based on the design process following the “SAM” model that permits, at its time, to be complemented by other qualitative and quantitative methods._x000D_ Experiencing IMPACTS INCLUDING INCLUDING INCLUDING IN THE WELCOME OF THE BEST FRUT OF THE SENSIBILISATION, FORMATION, COMMUNICATION AND COORDINATION BETWEEN IMPLICED AGENTS. THE RESULTS WILL BE REALISED IN THE CREATION OF GUIDELINES, PROGRAMS AND PROJECTS OF LEARNING-SERVICE BETWEEN THE UNIVERSITY AND THE SCHOOL/HEALTH INSTITUTIONS, THE DESIGN OF TEACHING METHODS AND TECHNOLOGICAL RESOURCES ADAPTED, AND A SCIENTIFIC PRODUCTION TRANSFERABLE TO OTHER CONTEXTS. (English) / rank | |||||||||||||||
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| Property / summary: The MINORITARY DISEASES (MS) PRODUCT MULTIPLE IMPACTS IN FAMILY, socio-educational and health ambITIES, so minimising them is a challenge that requires a CONTEXTUALised search._x000D_ The LITERATURE INDICATE THE DOUBLE EFFECTIVE THAT IS THE PRIVATION OF A EDUCATIVE AND SOCIAL TAN RELEVANT AS THE SCHOOL. THEY DIRECTLY AFFECT THE WELL-BEING OF CHILDREN AND ADOLESCENTS, WHICH IS ALSO DIMINISHED BY THE DIFFICULTIES CAUSED IN THEIR SCHOOLING BY ABSENTEEISM, IGNORANCE OF EM, OR LACK OF ADEQUATE SUPPORT. TO THIS IS ADDED THE CHILD’S OWN EXPERIENCE WITH THE DISEASE, WHICH FORCES HIM TO RELATE IN A NEW ENVIRONMENT OFTEN INTIMIDATING SUCH AS THE HEALTH CARE. The IMPACT of the MS is also known in the FAMILY SYSTEM, describing different critic phases as the expectation or absence of a clear diagnostic, the SPECIFIC MEDICATION FALTA, DIFICULTS IN TREATMENT OR SOCIAL INCOMPRENSION._x000D_ ONE OF THE MORE ANTECENTS determinants of this state in the ConText BALEAR is the INEDITHOS PROJECT, SURGITED OF THE INTENCTION OF IMPROVING THE QUALITY OF LIFE OF PATIENTS WHICH THE PERMANENT FORMATION IN THE SEMICRITIC UNIT OF THE PEDIATRIA SERVICE OF THE HOSPITAL ARE ESPASES, providing Attention and RESOURCES IN THE EDUCATIVE AND SOCIAL ENVIRONMENT OF THE COLABORATION WITH THE UNIVERSITY OF THE UNIVERSITY OF LES ILLES BALEARS (UIB)._x000D_ RESULTS DERIVED OF A R & D R & D POINT OF MANIFIESTIVE THAT THE PEDIATRIC ATENTION REQUIRED ADAPTED COMMUNICATION the NIVEL OF COMPRENSION AND EMOTIONAL STATES OF THE MENORES AND YOUR FAMILYS, BUT A COORDINATION WITH THE EDUCATIVE SYSTEM TO MINIMICE REPERCUSIONS, SINGLE FOR THE MENOR AS FOR YOUR DOCENTS AND COMPANIES OF CLASS._x000D_ HIPOTESIS: The QUALITY OF LIFE OF CHILDREN AND ADOLESCENTS WITH MS can improve if EDUCATIVE SOLUTIONS DIRIGTED TO INCREMENT COORDINACATION AND COMMUNICATION OF IMPLICED AGENTS MEDITED STRATEGIES AND INFORMATIVES AND TECHNOLOGICAL SUPPORT._x000D_ THE PROJECT the complexity of the attention to persons with MS and the needs that the different AGENTS may be able to play (PERSONAL SANITARY, PERSONAL EDUCATIVO, CHILDREN/young with MS and their families), with the task of improving the communication and coordination between educational and health systems, and to offer feedback to the Professor to sensitise and facilitate the inclusion of the best with the support of UNIVERSITY SERVICE-SERVICE STRATEGIES. In addition, it adapts to the NATIONAL RESEARCH STRATEGIES AND HORIZONTE 2020._x000D_ A MIXTA METODOLOGY, USING QUESTIONS AND DISCUTION GROUPS IN DISTINT FASES. The INVESTIGATION is based on the design process following the “SAM” model that permits, at its time, to be complemented by other qualitative and quantitative methods._x000D_ Experiencing IMPACTS INCLUDING INCLUDING INCLUDING IN THE WELCOME OF THE BEST FRUT OF THE SENSIBILISATION, FORMATION, COMMUNICATION AND COORDINATION BETWEEN IMPLICED AGENTS. THE RESULTS WILL BE REALISED IN THE CREATION OF GUIDELINES, PROGRAMS AND PROJECTS OF LEARNING-SERVICE BETWEEN THE UNIVERSITY AND THE SCHOOL/HEALTH INSTITUTIONS, THE DESIGN OF TEACHING METHODS AND TECHNOLOGICAL RESOURCES ADAPTED, AND A SCIENTIFIC PRODUCTION TRANSFERABLE TO OTHER CONTEXTS. (English) / qualifier | |||||||||||||||
point in time: 12 October 2021
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Revision as of 12:27, 12 October 2021
Project Q3134962 in Spain
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| English | No label defined |
Project Q3134962 in Spain |
Statements
15,790.5 Euro
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31,581.0 Euro
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50.0 percent
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30 December 2016
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29 December 2020
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UNIVERSIDAD DE LAS ISLAS BALEARES
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39°34'10.49"N, 2°39'0.25"E
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07040
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LAS ENFERMEDADES MINORITARIAS (EM) PRODUCEN MULTIPLES IMPACTOS EN LOS AMBITOS FAMILIAR, SOCIOEDUCATIVO Y SANITARIO, POR LO QUE MINIMIZARLOS SUPONE UN RETO QUE REQUIERE INVESTIGACION CONTEXTUALIZADA._x000D_ LA LITERATURA INDICA EL DOBLE EFECTO QUE SUPONE PARA LOS MENORES LA PRIVACION DE UN ENTORNO EDUCATIVO Y SOCIAL TAN RELEVANTE COMO ES LA ESCUELA. LAS EM AFECTAN DE FORMA DIRECTA AL BIENESTAR DE NIÑOS Y ADOLESCENTES, BIENESTAR QUE TAMBIEN SE VE DISMINUIDO POR LAS DIFICULTADES QUE OCASIONAN EN SU ESCOLARIZACION EL ABSENTISMO, EL DESCONOCIMIENTO DE LAS EM, O LA FALTA DE APOYOS ADECUADOS. A ELLO SE SUMA LA PROPIA EXPERIENCIA DEL MENOR CON LA ENFERMEDAD, QUE LE OBLIGA A RELACIONARSE EN UN NUEVO ENTORNO MUCHAS VECES INTIMIDANTE COMO ES EL SANITARIO. SE CONOCE TAMBIEN EL IMPACTO DE LAS EM EN EL SISTEMA FAMILIAR, DESCRIBIENDOSE DIFERENTES FASES CRITICAS COMO LA ESPERA O AUSENCIA DE UN DIAGNOSTICO CLARO, LA FALTA DE MEDICACION ESPECIFICA, LAS DIFICULTADES EN EL TRATAMIENTO O LA INCOMPRENSION SOCIAL._x000D_ UNO DE LOS ANTECEDENTES MAS DETERMINANTES DE ESTE ESTUDIO EN EL CONTEXTO BALEAR ES EL PROYECTO INEDITHOS, SURGIDO DE LA INTENCION DE MEJORAR LA CALIDAD DE VIDA DE PACIENTES QUE RESIDEN DE FORMA PERMANENTE EN LA UNIDAD DE SEMICRITICOS DEL SERVICIO DE PEDIATRIA DEL HOSPITAL SON ESPASES, PROPORCIONANDO ATENCION Y RECURSOS EN EL AMBITO EDUCATIVO Y SOCIAL FRUTO DE LA COLABORACION CON LA UNIVERSIDAD DE LES ILLES BALEARS (UIB)._x000D_ RESULTADOS DERIVADOS DE UN I+D ANTERIOR PONEN DE MANIFIESTO QUE LA ATENCION PEDIATRICA REQUIERE UNA COMUNICACION ADAPTADA AL NIVEL DE COMPRENSION Y ESTADO EMOCIONAL DE LOS MENORES Y SUS FAMILIAS, PERO TAMBIEN UNA COORDINACION CON EL SISTEMA EDUCATIVO PARA MINIMIZAR LAS REPERCUSIONES, TANTO PARA EL MENOR COMO PARA SUS DOCENTES Y COMPAÑEROS DE CLASE._x000D_ HIPOTESIS: LA CALIDAD DE VIDA DE LOS NIÑOS Y ADOLESCENTES CON EM PUEDE MEJORAR SI SE LES OFRECEN SOLUCIONES EDUCATIVAS DIRIGIDAS A INCREMENTAR LA COORDINACION Y LA COMUNICACION DE LOS AGENTES IMPLICADOS MEDIANTE ESTRATEGIAS FORMATIVAS E INFORMATIVAS Y APOYO TECNOLOGICO._x000D_ EL PROYECTO PONE DE MANIFIESTO LA COMPLEJIDAD DE LA ATENCION A LAS PERSONAS CON EM Y LAS NECESIDADES QUE LOS DISTINTOS AGENTES PUEDEN PLANTEAR (PERSONAL SANITARIO, PERSONAL EDUCATIVO, NIÑOS/JOVENES CON EM Y SUS FAMILIAS), CON EL OBJETIVO DE MEJORAR LA COMUNICACION Y LA COORDINACION ENTRE LOS SISTEMAS EDUCATIVO Y SANITARIO, Y OFRECER RECURSOS AL PROFESORADO PARA SENSIBILIZAR Y FAVORECER LA INCLUSION DE LOS MENORES CON EL APOYO DE ESTRATEGIAS DE APRENDIZAJE-SERVICIO UNIVERSITARIO. ADEMAS SE ADECUA A LAS ESTRATEGIAS NACIONALES DE INVESTIGACION Y AL HORIZONTE 2020._x000D_ SE PROPONE UNA METODOLOGIA MIXTA, UTILIZANDO CUESTIONARIOS Y GRUPOS DE DISCUSION EN DISTINTAS FASES. LA INVESTIGACION SE BASA EN PROCESOS DE DISEÑO SIGUIENDO EL MODELO DE APROXIMACION SUCESIVO (SAM) QUE PERMITE, A SU VEZ, COMPLEMENTARSE CON OTRAS METODOLOGIAS CUALITATIVAS Y CUANTITATIVAS._x000D_ LOS IMPACTOS ESPERADOS INCLUYEN UN INCREMENTO EN EL BIENESTAR DE LOS MENORES FRUTO DE LA MEJORA EN LA SENSIBILIZACION, LA FORMACION, LA COMUNICACION Y LA COORDINACION ENTRE LOS AGENTES IMPLICADOS. LOS RESULTADOS SE CONCRETARAN EN LA CREACION DE GUIAS, PROGRAMAS Y PROYECTOS DE APRENDIZAJE-SERVICIO ENTRE LA UNIVERSIDAD Y LAS INSTITUCIONES ESCOLARES/SANITARIAS, EL DISEÑO DE METODOLOGIAS DOCENTES Y DE RECURSOS TECNOLOGICOS ADAPTADOS, Y UNA PRODUCCION CIENTIFICA TRANSFERIBLE A OTROS CONTEXTOS. (Spanish)
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The MINORITARY DISEASES (MS) PRODUCT MULTIPLE IMPACTS IN FAMILY, socio-educational and health ambITIES, so minimising them is a challenge that requires a CONTEXTUALised search._x000D_ The LITERATURE INDICATE THE DOUBLE EFFECTIVE THAT IS THE PRIVATION OF A EDUCATIVE AND SOCIAL TAN RELEVANT AS THE SCHOOL. THEY DIRECTLY AFFECT THE WELL-BEING OF CHILDREN AND ADOLESCENTS, WHICH IS ALSO DIMINISHED BY THE DIFFICULTIES CAUSED IN THEIR SCHOOLING BY ABSENTEEISM, IGNORANCE OF EM, OR LACK OF ADEQUATE SUPPORT. TO THIS IS ADDED THE CHILD’S OWN EXPERIENCE WITH THE DISEASE, WHICH FORCES HIM TO RELATE IN A NEW ENVIRONMENT OFTEN INTIMIDATING SUCH AS THE HEALTH CARE. The IMPACT of the MS is also known in the FAMILY SYSTEM, describing different critic phases as the expectation or absence of a clear diagnostic, the SPECIFIC MEDICATION FALTA, DIFICULTS IN TREATMENT OR SOCIAL INCOMPRENSION._x000D_ ONE OF THE MORE ANTECENTS determinants of this state in the ConText BALEAR is the INEDITHOS PROJECT, SURGITED OF THE INTENCTION OF IMPROVING THE QUALITY OF LIFE OF PATIENTS WHICH THE PERMANENT FORMATION IN THE SEMICRITIC UNIT OF THE PEDIATRIA SERVICE OF THE HOSPITAL ARE ESPASES, providing Attention and RESOURCES IN THE EDUCATIVE AND SOCIAL ENVIRONMENT OF THE COLABORATION WITH THE UNIVERSITY OF THE UNIVERSITY OF LES ILLES BALEARS (UIB)._x000D_ RESULTS DERIVED OF A R & D R & D POINT OF MANIFIESTIVE THAT THE PEDIATRIC ATENTION REQUIRED ADAPTED COMMUNICATION the NIVEL OF COMPRENSION AND EMOTIONAL STATES OF THE MENORES AND YOUR FAMILYS, BUT A COORDINATION WITH THE EDUCATIVE SYSTEM TO MINIMICE REPERCUSIONS, SINGLE FOR THE MENOR AS FOR YOUR DOCENTS AND COMPANIES OF CLASS._x000D_ HIPOTESIS: The QUALITY OF LIFE OF CHILDREN AND ADOLESCENTS WITH MS can improve if EDUCATIVE SOLUTIONS DIRIGTED TO INCREMENT COORDINACATION AND COMMUNICATION OF IMPLICED AGENTS MEDITED STRATEGIES AND INFORMATIVES AND TECHNOLOGICAL SUPPORT._x000D_ THE PROJECT the complexity of the attention to persons with MS and the needs that the different AGENTS may be able to play (PERSONAL SANITARY, PERSONAL EDUCATIVO, CHILDREN/young with MS and their families), with the task of improving the communication and coordination between educational and health systems, and to offer feedback to the Professor to sensitise and facilitate the inclusion of the best with the support of UNIVERSITY SERVICE-SERVICE STRATEGIES. In addition, it adapts to the NATIONAL RESEARCH STRATEGIES AND HORIZONTE 2020._x000D_ A MIXTA METODOLOGY, USING QUESTIONS AND DISCUTION GROUPS IN DISTINT FASES. The INVESTIGATION is based on the design process following the “SAM” model that permits, at its time, to be complemented by other qualitative and quantitative methods._x000D_ Experiencing IMPACTS INCLUDING INCLUDING INCLUDING IN THE WELCOME OF THE BEST FRUT OF THE SENSIBILISATION, FORMATION, COMMUNICATION AND COORDINATION BETWEEN IMPLICED AGENTS. THE RESULTS WILL BE REALISED IN THE CREATION OF GUIDELINES, PROGRAMS AND PROJECTS OF LEARNING-SERVICE BETWEEN THE UNIVERSITY AND THE SCHOOL/HEALTH INSTITUTIONS, THE DESIGN OF TEACHING METHODS AND TECHNOLOGICAL RESOURCES ADAPTED, AND A SCIENTIFIC PRODUCTION TRANSFERABLE TO OTHER CONTEXTS. (English)
12 October 2021
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Palma de Mallorca
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Identifiers
EDU2016-79402-R
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